» Supporting Jaiden

Jaiden was born on the 22/08/2010 at three weeks old Jaiden was diagnosed with Cystic Fibrosis

A life threatening condition which affects some major organs most of all his lungs.

His body cannot breakdown mucus and therefore leaves him with a thick secretion in his lungs which then becomes a breeding ground for infections -

Infections mean lung damage which inevitably affects his life expectancy.

The life expectancy for children born today with the disease stands at over half live to 37 years.

To help prevent thick secretions in the lungs Jaiden has a nebuliser twice daily followed by physiotherapy which is carried out for 20 minutes each time, this can increase when he has an infection.

We are raising funds to purchase a Chest Therapy Vest from a company called Hill-Rom (Leicester)

The vest costs £6995.00 and will last from the age of 5 months to approx 10 years, but is not available on the NHS

The vest will constantly massage his chest, which aids the breakdown of the thick mucus on his lungs

In America all children with Cystic Fibrosis have them and the research is very promising

The vest is by no means a cure, but will aid his infancy , childhood and quality of life .

http://www.hill-rom.co.uk/uk/United-Kingdom/Products/Airway-Clearance/The-Vest/

     Nevill Hall December 2010       

Teri & Darren (Jaiden's parents) have worked for Maintenance Force for 10 years and unfortunately due to Jaiden's

illness Teri has had to give up work indefinately.

We are happy to pass over any donations for Jaidens Vest and would like to thank all sponsors on Jaiden's parents behalf.

Diary:

January 2011

In hospital for 2 weeks with bronchiolitis

February 2011

 22nd Has to go back to hospital for 2 weeks for IVF due to  growth on his lungs left by bronchiolitis

 24th Has has a long line inserted into him for treatment :-( as the short line failed...

 25th After trying all yesterday and failing to insert the long lines into each of his limbs due to his small size they have reverted back to a short line.

         There is a meeting today to find out how to progress.

March 2011

04th   A generous and lovely quote form the Local Free Press Series today

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THE story of Pontypool baby Jaiden Jobbins who suffers from cystic fibrosis has touched the hearts of Free Press readers.

Get well cards and donations towards an appeal to buy a chest therapy vest for Jaiden have been sent in to our Pontypool office.

One pensioner from Blaenavon sent £5 in to the appeal, saying "It isn't much but if everybody gave £5 then we would get the vest in no time at all."

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http://www.freepressseries.co.uk/news/8884315.Plight_of_Pontypool_s_baby_Jaiden_touches_hearts_of_readers/

March 30th 2011

Back to hospital for a weekly review. Jaiden is looking well and has been told by the consultant he is making fine progress

Sponsors Listed below:-

Teri & Darren would like to thank everybody for their support in raising funds to help towards the purchase of the massage vest for Jaiden.

We will keep all supporters updated

Thank You All xxx

                        If you would like to donate via Paypal, please leave a message to allow Teri & Darren to acknowledge their appreciation

Thanks Martyn for all your help

Cheers Clive (Arthur & Mena )

Thanks to John @ ABL....  Joseph of Supreme Blinds (Pontypool)........Andrew Jenkins (a well missed ex office administrator)

  Myra & Craig

                                                                  Graham

                                                             Lisa Edwards

Sir Joshua Reynolds Lodge No. 4782 (Devonshire Masons)

Chips & Fyn (Abersychan High St Chippie)

Gareth Malson (Raising money from works colleagues)

Cwmfrwdoer School for numerous fund raising events

Paul & Family at Pentwyn Post Office for various event arranging and donations of gifts Bingo night at Pentwyn Chapel 15th April

Doors open 18.30, Eyes down at 19.30 All bingo fanatics welcome

Bernard Jeffries (Resitech)Donating Prize fund for charity pool event, bouncy castles food & live music at Talywain Rugby Club

                                                              (Details etc below at foot of page)

Jonathon & Ria Gibbs for organising the event below and all the hard work that has gone into what should be a fabulous day for all

                     Jaiden & big brother Jamie...

Richard & Ann -The Twyn y FFrwd for their kind donation towards prizes (Good Pub Food Meals)

A Huge Personal Thank You to a Person who wishes to remain anonymous for a most generous donation. XXXX Jaiden

Thanks to all the local donations and support from Abersychan, Blaenavon,Pontypool, Garndiffaith, Blackwood and on and on

A Poem written by a local person:-

Is it too much to ask for a life of a child

If a Mother simply says

"Help my Baby"

When she is fighting for something

So special So dear

Watching him suffer

The pain anchors in her heart

Is it too much to ask for wanting

Every possible reason to see him well

Every possible reason to see him grow

Not perfect, but a light in his Mothers eyes

Teri shouts so everyone can hear her

"Please Help My Son"

 

X

 

Once again thanks for the kind donations however large or small,remember........

large rivers are always formed from small raindrops.